One thing that I've noticed, and it is not just with the knee...I have always known it about myself. If I don't feel well, at night it is always worse. I have pondered this many times, and I always came to the same conclusion: when I am up and moving, and doing things, it keeps my brain occupied and distracted. When I am in bed, in the dark, in the quiet, with nothing keeping my brain occupied, I take more notice of what I've been ignoring all day, whether it be a pain, or a problem, or something on my heart.
So...when I went to bed Wednesday night, I knew that I was coming down with Tim's cold. It took forever to fall asleep, but when I finally did, I was back up at 3AM. My head ached. My body ached. I was cold. I moved to the couch and back to the bed. The thing was, as far as the cold went, it was not even a bad cold, but the body aches seemed to really to make me take a lot more notice of the ache in my leg. It really was the strangest thing.
I had the PT guy coming at 9:30, but I was so tired and cold and achy that I just called and canceled with him. He said he understood completely, and that he'd see me next week.
Much to my surprise, I got a call from the surgeon's office about an hour later. They were very stern about missing two PT appointments.
"But I haven't!" I said. "I missed today's appointment, but I am sick. I've never missed any other appointments, ever."
She said, "The home care has notified us that you have missed two PT appointments this week and we are required to follow up on this to see what is going on."
I said, "I haven't missed two appointments, as I already explained. I've had two appointments this week. I was due for one more which I canceled because I am sick, and if you want to talk numbers, let's talk about the fact that by Monday, I had full extension. Let's talk about how I gained 8° of flexion in my knee between Monday and Wednesday." She sounded rather taken aback but said again that they'd been notified... I said, "They are wrong."
After that conversation, I was irritated. I called the Home Care people. 'Mark' answered. I explained the situation, and much to my surprise, he said, "You missed today AND you missed yesterday."
I said, "I absolutely did NOT miss yesterday."
In a bored voice he said, "let me look..." and he said, "Oh...you didn't."
Now, let's be clear, mistakes happen. I understand that. I've made enough mistakes in my life to be fully cognizant of that fact. I also believe that when a mistake is made, it needs to be fixed. The mistake was his mistake, but instead of saying, 'I made a mistake and I need to fix that,' he began to say that he had not notified the surgeon's office, that they had called him to follow up on my progress.
I was even more irritated by that because the surgeon's office was very clear about who called who, but even if it had happened as he said, he was the one that had provided the misinformation just has he had to me initially in the phone call.
The tattletale immediately called the PT, who texted me wanting to know what happened. I am not a big texter, and tried to sum it up briefly. He was with another client but asked if he could call when he left that house, which he did. We discussed the situation, and I said, "The office made a mistake. If he had offered to address and fix that mistake, I wouldn't be so upset. But he immediately went into CYA mode (CYA = Cover your ass)."
He assured me that he would call the surgeon's office and assure them that I was a very motivated client, doing extremely well, and that only one appointment had been missed. That made me feel better about things.
I received a phone call shortly after that the nurse was coming to discharge me from the home health.
I felt pretty awful. Like I was a problem and so they were dumping me. A PITA. (PITA = Pain in the ass). It was my understanding that I'd go to Tuesday's doctor appointment, get 25 staples removed, and they'd make the decision whether I could graduate from home care, so this seemed precipitous to me.
The nurse was young, but she was a very sensible woman. She did her part of things, noted that I was doing extremely well, that the incision looked great, and reminded me that I really should still be using the walker. I forget about it when I'm moving around the kitchen and then wind up migrating all over the house while my walker stands at the ready in the kitchen.
When she got to the 'do you have any questions for me?' I asked my question outright. 'Was I being discharged because I was a problem.' She looked surprised and said no. I explained the situation. "Oh my gosh!" she said. "That would really have made me mad. Things like that can really mess up your insurance."
That had not even occurred to me.
She said very briskly, that she was going to call the surgeon's office too, just to make sure that there was no mistake, that they were not dealing with a non-compliant patient.
So that did make me feel better, despite my cold.
I've had two awful nights, but it seems as if the cold is going away, and last night I slept soundly once again. I woke up this morning and felt rested. Today will be a different day.
Things for me are always worse at night. / One would think they would be happy you were not infecting your physical therapist. Hope you feel better and get this straightened out.
ReplyDeleteI think it is. I have an appointment Tuesday to get my staples removed, and I will make sure and certain that we are all on the same page.
DeleteWhat a headache. I was offered home health but opted to go out for therapy. Larry had home health and loved it, since he had the same therapist each time, and she was pretty!
ReplyDeleteI was on a Facebook group for tkr and learned a lot there. It helped me understand much of what was going on and what to expect with my knee.
Nights are still a problem for me, so I rejoice when I have a good night! You are doing far, far better than I did for sure. Even with a cold. I hope that passes
Passes quickly! Dropted a word there!
DeleteI have not had the same people, but everyone that came to the house has been very nice. Can I ask? How far out from surgery are you? It's been six months, right?
DeleteSince October 1. My experience was vastly different from my husband's, though. He slept well almost from the day after surgery with both knees, and his recovery was very fast. It varies so much, person to person. Plus, I had a couple injuries to that knee and one serious scar, which may be impacting my recovery. But I can see slow improvement every week, so I may just be one of those that takes forever to get healed up. Which is odd, because I have always been a fast healer.
DeleteAgain and again, it seems to ring true. If you are well slept, that's a big boon to any recovery. Did they ever figure out whether your issues had to do with nerves. Did you have the cortisone shot?
DeleteNothing ever gets done or corrected the first time. You'll probably have to follow up again.... I'm glad you're doing so well.
ReplyDeleteThis is a good reminder for me, Deb. I am taking nothing for granted though. I will follow up when I go to the surgeon's office on Tuesday.
DeleteI never accepted home health, because I wanted my independent PT, who has done great work, with no interference from the surgeon's office. They know and trust his work. I had experience with my late husband of the bungling of the home care people! I'm glad you're doing well, but you didn't need this hassle on top of a cold and recovery.
ReplyDeleteThe cold would have simply been an annoyance under normal circumstances, but I think that on top of everything else, it was a very unhelpful add-on. I'm getting over it. I'm sitting here with a cup of ginger lemon tea, and things seem much better, probably due to the fact that I slept so well.
DeleteI would have complained too. It could be a coincidence that you were promptly removed from home care following your calling them out for their mistake … or could be something else. The original plan with your doctor making the determination as to whether you continue home care PT, during your appointment makes more sense. Keep on healing and hope you are feeling better! Cali
ReplyDeleteI was really surprised at the hubbub.
DeleteIt seems that you are having a difficult time. Having a cold when you're recovering from major surgery is no fun.
ReplyDeleteI would have been extremely annoyed, particularly if it threatened insurance cover and/or future treatment. I hope it's been properly sorted now and a few wrists have been slapped.
It always seems that people are more concerned with circling the wagons than they are about addressing the problem that makes circling the wagons necessary. I doubt anyone's wrists will be slapped.
DeleteI'm glad you spoke up for yourself right away and followed up to get the info corrected. Hopefully, your charts are corrected and you are back on track. Sounds like you are doing very well with the knee recovery. Hope the cold goes away and stays away!
ReplyDeleteI'm usually pretty good about speaking up for myself. I think that I am doing quite well, really. I was out today. We went to a grocery store. I walked down to feed the cats today at the new house. I studied my little flower bed. We've had a lot of rain and cool weather and my distressed plants are really doing well. I have columbine blooming, azalea, lilac, sea thrift, salvia, and one white flower, which I've forgotten. That made me happy.
DeleteMy wife had knee replacement surgery 6 months ago. She went through very similar recovery as you are. Although we didn't have home health, our PT was less than a mile from home. Of course it was her right leg, so she couldn't drive for a few months. It is fascinating to me that within a couple hours after surgery, they have patients up and walking.
ReplyDeleteMy only complaint in the process was during her surgery, the pharmacy called me (the clinic evidentially outsourced this) and the pharmacist did everything but threaten to break my legs if I didn't cough up the $38 copay immediately. I had to give a credit card in order for my wife to get her meds!
She has recovered well, but has incurred tendonitis for some reason - her quad is very tight and painful. As a result she is back on PT. My uneducated opinion is that it may be partially a result of her over-enthusiastic work out regimen. She became obsessed about exercise a year prior to surgery, and although I beg her to take a day off now and then she refuses.
My only advice is to not get discouraged when you have a bad day, and as you have already done, take a day off now and then. Wishing you continued success in your recovery!
It is my right leg as well, and I've been wondering how long it will take me to be able to drive again. I do have a question though. The tendonitis: was it on the back of the knee, on the inner side? I am experiencing something there, which makes me cautious about pushing too hard. I can't wait to talk to the PT about it and get his opinion.
DeleteHer tendinitis is on the front just above the knee. You can actually see how tight it is.
DeleteThat sounds horrible. how long has she been dealing with this? How long after the replacement did it start?
DeleteSorry for the delayed response. Like you she initially had great progress in range of motion and she got off the pain meds relatively quickly. Not entirely sure when the tendinitis actually began to manifest itself but I guess it was about a month afterwards.
DeleteBtw did you get one of those “ice machines “? We learned after ice wasn't needed that there was some sort of small electrical machine that only cost $90 or so- would have eliminated rotating ice packs every few hours!
The medical system (industry?) can be, as we all know, extremely domineering. THEY know what's best. Always. And a patient's input is not to be trusted on the face of it. Not all doctors, not all of the health care workers but many. It is incredibly frustrating.
ReplyDeleteI think because I am out in the middle of no-man's land, where options are few and far between that this reflects on the care. People try harder if they know that you can simply change providers. Sounds harsh, but I kind of feel that way.
DeleteOh sheesh. Just what you don't need.
ReplyDeleteI hope your cold is just a fleeting aberration and you fell better soon.
Cripes, Jaycee! Compared to you, this has been a walk in the park. I hope you get over this soon. It does sound a lot like a norovirus. I hope that Lord P is coming out of this as well.
DeleteAs a very responsibly and (mostly) compliant person, that situation would make me SO FRUSTRATED. I'm glad you got it worked out. You remind me that I need to use some Zicam as I feel a cold coming on. Take care!
ReplyDeleteYou know, I had zicam. I remembered when you reminded me. Could have used you a couple days ago.
DeleteIt's bad enough dealing with he said she said, without the effect on your insurance...and you have to pay for things as well!!
ReplyDeleteHopefully it is resolved. I will double make sure that it is.
DeletePlease follow through with insurance and make sure they don't charge you for the alleged missed appointment that never was. It is possible home health was going to dismiss you due to good progress and success. PT dismisses usually on a different method. Good luck! Linda in Kansas
ReplyDeleteGood to know. Thanks, Linda!
DeleteWe can get lost in systems. I have had problems getting post-surgery help to come here. I am just within the required time limit to go there, which is a post-op trip via highway from town to an unfamiliar location in the city. No, I won't do that.
ReplyDeleteWe can.
DeleteI sometimes wonder if bureacracy is another tool to take your mind off pain by giving you more!! It sounds like they specialise in it.
ReplyDeleteBahaaaaaaahahaa!!!! That's hilarious idea.
DeleteI didn't like being scolded as a child and I REALLY don't like it as a "mature" individual. So I would have been really pissed as this unfolded. Sounds like you maintained your poise, at least outwardly.
ReplyDeleteCongrats on the extension and other successes.
Ceci
I try to make sure my point is not lost. Too many times, people are looking for a reason to dismiss your words. Temper gives them a knee jerk reason to do just that.
DeleteIf only they knew who they were dealing with in advance, they may take a little more care with 'facts'. Sorry about your cold. Very soon you will have forgotten about it, I hope.
ReplyDeleteWell, I suppose they know now. I am over the cold now.
DeleteIt's bad enough to be recovering from serious surgery, but when the administration messes up and gets you into trouble that's really bad. they heard from you so I hope the next time they get it right.
ReplyDeleteIt was an error. One that they should have simply acknowledged and corrected.
DeleteWell, that was truly a PITA! Ya know, there's no excuse for making a snap judgement like those folks did and then not owning up to it. Good luck on sorting this mess out. Other than the rudeness on the part of the home health "professionals" it sounds like you are making good progress.
ReplyDeleteIt really did make me grumpy. In thinking about it, I suppose it had more to do with the fact that I have really been very excited about my progress. To have it turned into a hint that I was a slacker smarted.
DeleteI am glad you got that straightened out. I had not considered the ramifications of the insurance people sticking their noses in. Healthcare can be a pain in general. Glad you are making progress, it sounds like you're doing extremely well.
ReplyDeleteI feel like I'm doing extremely well too. I have to say that quite honestly, I am amazed at how great that new knee feels. This is a life changing thing for me. Really. Even now, I know that.
DeleteI am so sorry you had this experience. I hope ๐ that your cold heals quickly. I find that homemade chicken ๐ soup with some onions and garlic helps as well as drinking plenty of water to flush it out. And getting adequate rest helps as well.
ReplyDeleteReally and truly, I don't think this cold would have even slowed me down. It's pretty much gone already.
DeleteYour friend’s writing is heartfelt and relatable, capturing both physical discomfort and emotional frustration with clarity. The reflections on nighttime vulnerability are especially poignant. Thanks for sharing us this awesome post
ReplyDeleteThank you.
DeleteI would have been furious as well, with the PT who said you weren't compliant, because it can indeed mess with your insurance! Can everyone just do their job, please? I mean even the minimum of doing their job - is that too much to ask? Sigh. Once you're through this Debbie, there will be no stopping you!
ReplyDeleteThat guy was not a PT. He was an office guy. Everyone else who has actually come to the house has been nice.
DeleteWell, I'm glad you followed up with several people and hopefully the record will be corrected. That would have bothered me too! Especially Mark with the "bored voice." Fingers crossed it doesn't affect the insurance.
ReplyDeleteWhen I go to the office on Tuesday to get the staples removed, I will make sure that they know. I don't see how it could affect my insurance. I mean, I sign paperwork attesting that they were there at the end of every visit.
DeleteI am glad that your record is set straight. Gosh, I bet you were mad with the chap who screwed it up - "Mark with the bored voice". You can do without people like that in our life. Thank heavens you get to sign paperwork after each visit, so you have proof.
ReplyDeleteI bet that donut tasted SO good, and belated birthday wishes.