Saturday, May 17, 2025

The Importance of being Unconscious.

 I think, strangely, the toughest part of this, for me is the lack of sleep. The pain is bad, but you know, you can work your way through pain if you have the knowledge that it will end, and that things will get better. (They are getting better, by the way, and it is only 3 days past surgery.)

But the overnight at the hospital nearly did me in. 

It was so noisy, and it really was not the fault of the nurses, not really. They had two post surgical patients who were doing a lot of yelling. One of them probably was a patient with dementia. So it was noisy. And what I tried my best to do at the beginning of the night was to take care of myself as best I could. I know that they were pleased that I was up and walking, and not only walking but walking well. 

That made me glad too. 

But there was also plain carelessness. My two goals for that first night were to be up and sitting in a chair and to stay in control of the pain, and they listed when I was due for more pain medication right on the white board there with my goals. 

So, I was up and when I finished in the bathroom, I came out to the chair to tick that first goal off. I was trying to be as easy as possible for my nurse, who was very nice. Soft spoken. But when I sat in that chair, my feet did not reach the floor, and having my leg just dangling, was excrutiating for my knee. I asked for my leg to be elevated. The nurse said doubtfully, "They don't want it elevated." I said, "I can't take this. It is too painful." 

She whisked out of the room. I assumed she was going to ask for advice, but she did not return. I sat there in my chair in agony, and even worse? My call bell was on the nightside table. I couldn't get to it. My walker had been moved to the other side of the room, a safety protocol I think, to keep strong willed patients from marching all over their room unsupervised. 

My supper was delivered, and though I was told I would get a regular diet, I was delivered a cup of broth and some blueberry yogurt frozen ice thing. In hindsight, I wonder why I did not speak to the young man who brought my meal, ask him to go get a nurse. I don't know. I honestly can't tell you. I just felt sick with pain, and I hadn't eaten in 24 hours, and I. Just. Don't. Know. 

I ate, because it seemed like the thing to do, and truthfully, the broth and the frozen stuff really did fill me up. Finally, at shift change, the night nurse came in and was introduced, and the day nurse was a bit horrified to find me sitting there with my supper tray in front of me, still in my chair. I had been forgotten. That's the reward of being a stoic, I guess. 

They were dismayed that I'd only had clear liquids for supper and sent down, right away for a turkey sandwich. It came with a cup of fruit and a bag of chips, and let me tell you, although I thought the pain was more important than food, turns out that I was wrong. I ate every bit of that supper. 

I said, "I can't stand this pain anymore. I really can't. I need to go to the bathroom and to get my teeth brushed and go to bed." 

Very efficiently, they helped me get that done. 

I was given a pain killer, which I took like the obedient patient I was. 

The yelling went on. I adjusted my television to one of those 'sound of nature' programs and tried to will myself to sleep, but I was up every hour on the hour. The compression machine alarm kept going off, and they were getting upset with that. It squeezes your legs to prevent blood clots, and quite honestly, it was very soothing...in between the alarms. They finally just unhooked it all together. 

They assured me that they'd left the machine that ices the joint functioning. I honestly did feel like it wasn't working, and mentioned that, but was assured that it was. 

The IV alarm went off twice in the night to let them know the antibiotics were done. 

The patients kept yelling. 

At 3:09, I heard a triumphant shout "Hooray! I did it!" followed by a lot of cheering. That's when I began to be a bit irritated with the nurses. 

I asked to go to the bathroom, and the nurse came in. She apologized for the rowdiness in the hall. (I had not mentioned it...) She put down the bedroom and left the room. That's where the second mistake of the night happened. I thought she was in the room. The other nurses just stayed right in the room. I made my way to the bed, made it up again, and waited for her to return. She did not. Once again the call bell was across the room on the table. 

Finally, in desperation, I got myself into bed by myself. I could not hook up the ice to my knee. My door was closed because I requested it. I couldn't get my siderail up. I couldn't reach my button. I was so exhausted that I was nauseous and I was in a lot of pain because I didn't request my pain killer. I laid there in a mess trying to sort out when I had the last dose. At 5AM a person came in to do the labs, and I poured out my tale of woe to her. 

She got someone to come in who put up my bedrail, got my call bell for me, complained that she'd unhooked my leg things on purpose because of the alarm, I tried to explain that the gentle squeezing and ice felt very nice. She hooked me up once again, gave me my pain killer and swooped out of the room. She was not happy, and she showed it. 

Once again, the ice machine, squeezing machine began to beep, and when I rang my bell, she was very much annoyed. "That's why I unhooked it!" Unhooked it. Swept back out the door. 

By that point, I was feeling pretty nauseous. I know that I throw up when I am exhausted. I always have. But at this point, I was feeling as if it was partly due to the pain killers, and I didn't know what to do. I mean, I needed pain relief. 

Long story short, the next nurse to come in found in the throes of dry heaving, and I was beyond all caring about the poor nurses at that point. I cried. I said that there were things that were beyond their control, and I am sorry for that, but also, there were things that weren't beyond their control. Regularly checking on patients for one thing. 

The morning nurse figured out that my ice machine was not working because no one had put ice water into it, so there was no cold water to be pumped through. I was a mighty mess, people. 

Long story short, a primary care physician came in to tell me what they were sending me home with, drug wise. I said, "Please...is there a pain relief that is not a narcotic? I really think that is why I am throwing up." He said, "Oh, we will give you something for the vomiting." 

They did. 

It helped. 

When the nurse came to read through the prescriptions that would be waiting for pick-up, once again, I said, "I think the pain killers are making me sick. Isn't there anything else that I can have that is not a narcotic?" and she said, "This is not the same thing that you had in the hospital. I promise you that it will be different, once you are home."

I got out of there and home without getting sick in the car and I fell straight into bed and slept face down, feet hanging off the bed, for 2 1/2 hours. I came out to the couch and slept for two hours more. As night closed in, the discomfort began to increase. I took the anti nausea stuff and waited a bit before taking the pain killer. 

Spoiler: It was not different, and I got sick. 

I was also awake at 5am in bad pain, and unwilling to take anything for it. 

I struggled through the day, but in the end. I got through the day, and it was not fun, although at that point, I was pretty sure that I was not going to die. 

Last night, I went to bed and couldn't get comfortable. I had nothing for pain. I finally got up and did exactly what you are not supposed to do. I took an OTC sleep aid at 3 AM, and fell blessedly and soundly asleep. I slept until nearly 9, and got up, made myself my own high protein breakfast and...now I'm sitting here at the computer like any other morning...

In hindsight, Bob-ert, the advice I would leave you with is to be very clear about what you need and what you don't need. It would have been helpful to have an advocate sitting there to be my voice when I couldn't seem to get anyone to understand what I needed. 

And...whatever it takes, get some sleep!

80 comments:

  1. Thank you for sharing such an honest and detailed account. It’s clear how strong you are to get through all that, especially with so little rest. Your reminder to be clear about needs and to prioritize sleep is truly important—sometimes the simplest things make the biggest difference. Wishing you continued healing and peaceful nights ahead. I just shared a new travel post. I am excited for you to read it. Thank you. Happy weekend.

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    1. When you are too tired to think, you are too tired to really participate effectively in your own care.

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  2. Wow, this sounds awful. I wish you had had the care I got. And the quiet. I did get nauseous from pain meds, but ended up managing without them. I hope it goes better now.

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    1. Sleep, and then making up my mind to manage the pain without the pain killer, and I was a new woman, alright.

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  3. That is not acceptable nursing care. I'm guessing they were short staffed, but that's unacceptable too. Patients also have to speak up too, and insist, and advocate for themselves, because not all nurses are created equally. You are allowed to complain and get what you need. I much prefer patients who tell me what they need.
    I'm sorry it was such a shit show. It should not have been. I would write a letter to the hospital, although I doubt it would make any difference. For profit hospitals don't seem to care about anything, other than profit.
    Sending hugs woman.

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    1. I don't even know how to tell. I don't know how many nurses were there, and how many patients were there. But as I said, two of them were shouters. One was probably a dementia patient. That's rough to deal with.

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    2. There are always confused patients on inpatient units, with dementia or delerium. Nothing new, but other patients have needs too. There should be a Patient's Relation Department to make a complaint.

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  4. You had a real time of it. Among all of the other things, there was no need for that nurse to get stroppy with you. The word ‘stroppy’ just came to me. I don’t think I have ever used it before, but I do watch British telly. 😀

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    1. Well, that's quite a perfect word, really - stroppy. Yes. I remember when I met my son in law for the first time. He asked if I could understand him and I said humorously, "I have been watching Midsomer Murders for months now, just to prepare."

      Ahem. Apparently, I'm not funny in Britain.

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  5. Well that just sounds like everything that could go wrong, did. I am so sorry. I just hate to think of you being abandoned like that. Especially when you were sitting in the chair in agony. Pixie's right- there is no excuse for that sort of thing.
    Are you able to take ibuprofen or Tylenol? Uncontrolled pain is not good and can actually hinder healing as you know, I'm sure.
    I hope you're getting some help with things from other people. You simply cannot wear yourself out trying to fix meals or make a bed or do laundry. I'm sorry. I shouldn't be so bossy. Of course you know what you're doing and what you need. Here's to every day being better.

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    1. It's okay. I'm taking extra strength tylenol PM at bedtime. It normally works. Not tonight. You're not bossy, but I've made a note: If I ever need an advocate again, I'll send Tim off fishing with Glenn and you can come an take charge here!

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  6. What a horrible experience or experiences! There is nothing worse than being in pain and being ignored--or not listened to. I'm happy that you're home, getting some rest and improving.

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    1. I just felt like I was saying the same thing over and over and it wasn't making a difference. I was just too tired to handle all of that.

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  7. That is just awful...but you've thankfully survived and got home xx

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    1. Yes. Thankfully, I am home. This morning, I cooked my own egg, made my own coffee. I was quite pleased with myself.

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  8. That is absolutely not a good experience of patient care. I am so sorry that you had to endure that and hope that your experience of home care is much better. Rest and recuperate now x

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    1. That's exactly what I am doing. The Amish called and wanted me to take them yardsaling. Not for a while, I said.

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  9. Good grief. That was well and truly a shit show. I'm glad you're home, after the hospital experience, things can only get better.

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    1. Difference of day and night. I can't believe how much better I felt once I got a few hours of sleep under my belt. I was able to make decisions, see what wasn't working, figure out what would.

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  10. Good lord, what a shop of horrors that was. No excuse for that complete lack of caring for the needs of a patient.

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    1. It was not a fun time. But, had I had an advocate there, someone to speak up for me, I think it would have run better. That is my fault too, because I know how Tim is. It never occurred to me that I would really, really need an advocate. This time, I did.

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  11. I'm sorry for the terrible care you received. I think it's becoming more common as hospitals cut back on staffing to increase profits. My sister got horrible hospital care when undergoing cancer treatment. But so glad you're home now, and hopefully you'll make fast progress healing.

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    1. I really think that most patient care is out patient care. I never stopped to consider it. So it pays them, profit-wise, to make that as wonderful an experience as a hospital experience can be. In patient is more uncommon, and I think they don't prioritize that as well.

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  12. I am so sorry you had to endure all of that. Unfortunately, I have heard similar stories from many people. What is going on? Is our healthcare system in America completely broken? I usually say that patients are being released from the hospitals too early but, after reading your story, perhaps that is a very good thing.

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    1. The hospital we've always used is very disorganized. When I found Tim a different doctor, she worked under a different system/hospital. Interestingly enough, what drove me to change was the difference between our colonoscopies. Mine required 3 doctor calls. His was a letter from the doctor telling him how to prepare, where to show up. He had the procedure, was out the door. They said that everything looked fine and that if anything showed up in the pathology, they'd call. My doctor insisted that I needed a pre-appointment meeting, which consisted of me answering questions that they already had in my records. (I know, because when I didn't know something, they immediately looked it up.) The procedure itself. I was told it was mandatory that I return for my path results. My response was, "If my path report comes back as a problem, I'd expect you to be pounding down my door as a business opportunity." And this whole knee thing has been very well orchestrated, very efficiently arranged, and not one bit of problem until I stayed over night. Inpatient care seems to be the problem, I think.

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  13. That sounds horrible. I am sure that you are very happy to be home. Now the real recovery can begin.

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    1. It was a pretty rough night. Dry heaves are the very worst.

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  14. I am so angry on your behalf. I was the screamer after my arm surgery. I was hallucinating from the anesthesia and thought they were still doing the surgery. It is my understanding that, since my surgery was so late in the day, they had difficulty getting ahold of someone to finally prescribe something to shut me up. I did pass out and woke up still pumped full of whatever that was. BUT could not reach the call button since it was passed on the side with my broken arm. I finally was able to yell out when someone passed my door.
    Your experience makes mine seem like a trip to disney. I am so glad you are home.

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    1. I am glad I am home as well. My locus of control is once again my own home, my own rules, my own way to do things. I very much over rated my own abilities in a situation like that. Now I know better. What I love about the visiting nurse today is that she talked about pain relief, I said why I wasn't going to take the narcotics, and she immediately said, "That's actually not an uncommon response." And then she looked at my prescriptions and gave me a OTC pain killer that would work in my situation. I'm the kind of person who always thinks that every problem has a solution. It does...even if you have to put your heads together and figure a new way out. Nobody seemed willing to look at it any other way but their own.

      When she was done, she breezily walked out the door saying, "I can tell that you're one that doesn't need pushing!" and I replied, "...and don't you forget it either, sistah!" It was a whole different dynamic. Load off my mind!

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  15. Oh Debby - I am so sorry that it wasn't a smooth transition on this side due to sheer dumb lack of following procedure correctly on the part of others. Why, in this day and age, do we have call buttons attached places rather than somehow to the patients (or voice activated perhaps). Good luck and do consider that being stoic actually may not help your progress and there should be some option to relieve your pain and allow your healing and recovery to go best.

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    1. Things are so much better today. Our health care is -bottom line- concerned with profits. Unfortunately you really see that when you are in hospital. Up to this point, their performance had been quite impressive

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  16. Holy Hannah; glad that's over. Here's hoping everything going forward is smooth sailing.

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  17. Hope you can get pain relief that does not make you sick. I'm glad you are sleeping more now that you are home. That should make a big difference. Feel better soon!

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    1. The pain is so much better. A good solid sleep helped so much.

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  18. I know it is not always possible, but in our family, no person is EVER left alone in a hospital room overnight. Another family member is their advocate sleeping or dozing in that ridiculous chair that is in every hospital room. Is it inconvenient? Yes. Is it uncomfortable? Hell, yes. But that person is there to make sure their loved one is taken care of properly and not ignored. It might be a husband, a mother, a child, or a good friend, but someone else is in the hospital room with the patient. I am sending heartfelt good wishes for you to be taken good care of at home.

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    1. The importance of that was made very clear to me. Sometimes a person is unable to effectively advocate for themselves. It shocked me that I was one of them. I always thought I was made of sterner stuff than that. Another illusion shattered!

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  19. Well the best part of it all is that it’s now behind you. I am so sorry you had to go through so much. There are two knee replacements in my future and I can’t say I’m looking forward to the ops. Have you been prescribed physical therapy? Is that even a thing in the States?

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    1. It IS behind me. To be honest, I am amazed at how little pain there is tonight. I read a thing once about opioid addiction. The brain actually creates the pain in order to get the opioid. I can almost believe that, really. I had 2 pills at home, and said 'no more of that.' My knee gets jolts of pain at night, but I can think through them.

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  20. Oh, geez. This really helps me understand the difficulties of being in the hospital. I would have been frustrated with the nurses too, especially that night nurse who couldn't figure out why the ice machine was beeping. It doesn't seem very good practice to simply disconnect a beeping machine rather than solve the problem that's causing it to beep!

    Whatever -- you're home. That's the important thing.

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    1. I was just surprised that they simply disconnected. I would think that they could have figured it out. I mean it was doctor ordered.

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  21. Your experience couldn't have been much worse. Just take care of yourself and don't overdo it.

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    1. We all could have worked together more effectively, including Tim. He scooted out pretty quickly.

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  22. Have sure been thinking about and praying for you and glad to get this report. And thanks for the tips. I am scheduled for my doc's surgery center, and if all goes well, will go home that afternoon. Lots of good wishes being sent your way!

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    1. Work it out ahead of time. Be plain with Susan. The pain is crazy bad and you will need someone to be prepared to stand for you. Not staying over night is a terrific start. 3 days post surgery and the pain is very bearable. I am quite excited at what the future will bring.

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  23. Before you went for surgery, I am sure I wrote something banal like, I am sure you'll be fine. Clearly you weren't and I am very sorry to hear that. I know the 'I don't want to be a bother or trouble', feeling. My mother was the opposite. She wanted to be a bother and demanded attention, and guess what? She got it.

    Let's hope you healing is quick

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    1. It was actually quite an experience.. I am usually pretty matter of fact about what I need. But...if you are out of your mind with pain and exhaustion, you cannot be assertive. At least I can't. Good thing to know about yourself.

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  24. Terrible, just terrible! I'm so sorry you went through all this crap! So much of it seems to have been because the hospital staff wasn't LISTENING to what you were telling them, or believing what you said. I'm trying hard not to hope they have similar experiences in their futures as a learning experience.

    Ceci

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    1. I am really surprised that it all went to crap. This was a new hospital for us. Up to this point we had been so pleased with their efficiency.

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  25. Well, I am so sorry you had to go through all that! It was so unnecessary!
    Where the hell was Tim? Aarrggghh!
    Not one of my surgeries was that horrific!

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    1. Tim is not a nurse. It is best that I have no expectations that he be anything but what he is.

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    2. Didn't infer as a nurse, but he could have gotten the call button to you or summoned a nurse, helped in other non-medical ways!

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    3. He just doesn't like being in those situations. He never has been very good about dealing with illness or injury or whatever. It's his nature.

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  26. You don't hold anything back here. You tell it like it is. It's different from patient to patient. I hope things go much better at home and the extremes level off.

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    1. It is. I admit I should have advocated more vigorously for myself. i guess i was shocked at the amount of pain i was in. That part was quite a surprise, but it probably should not have been.

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  27. Sorry you went through all of that. Crappy nursing and aide care. The call light is ALWAYS to be in reach! Ask for the floor or hospital nursing supervisor if you embark on such an adventure again. Yes, the charge nurse should have checked your ordered diet, and all the devices that didn't work. They're meant to prevent blood clots and help diminish pain. Cotton balls help with loud patients and shared room's loud TVs, but staff loudness in the hall is rude. (Had a school principal visiting his mom in her room and was talking loudly. Had to tell him that we needed library voices!) Yes, being home helps a lot. Keep taking care of yourself. Even if you need the nausea meds, food or crackers before and after pain meds will help decrease nausea. Hang in there! Linda in Kansas

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  28. Oh, we're good now. I quit the pain pills and the nausea is gone.

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  29. They sound understaffed or just not top notch, for sure. Yes, it is hard to be your own advocate when you are in recovery and are exhausted and in pain. What an ordeal!! I have always found it really difficult to sleep in a hospital--ever. It's always noisy and they come and check on you during the night...well, yours SHOULD have come to check on you more often, though. It is always better once you get home. Morphine makes me nauseous and I just throw up if I don't get off of it, so I know about going without pain medication. Not easy, for sure. I am so glad you are home, though!!! So glad. :)

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    1. I did not get a feel for that side of things. I don't know how many people were there. At least 3 nurses, though.

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  30. Glad to hear that you are home after your awful hospital experience. I didn't have any machines on me to beep so that wasn't a problem, and I think I prefer my hallucinating after morphine to being sick! A friend recently had a. knee op and she had an ice machine at home. I guess they maybe weren't around 15 years ago? Do you get ongoing physiotherapy for a while? You are over the worst.....well done!

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    1. I remember a friend telling about seeing a fish swimming down the hall. He was enthralled at watching the river flow past his room. The ice machine has been worth its weight in gold, really.

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  31. That is a dreadful experience. I'm so sorry. You can't do anything about the noise and the demented patients, but pain and nausea and discomfort (chairs too high, for example) are easily managed by competent nurses.
    Recovering at home is much better.

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    1. It has been far more comforting to be at home in my own place, in my own familiar surroundings. I sleep a LOT better. Last night I slept probably 10 hours. Have felt great all day.

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  32. Debby - I was horrified reading this, I am so sorry that this was your experience. This is why people need someone with them at the hospital - a Doberman-like person who will make sure things go well, and raise hell when it doesn't. Last time I was in the hospital, I had my noise canceling headphones and earbuds for all the damned noise. Now that you are home, you can take much better care of yourself. It sucks to be so vulnerable in the hospital.

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    1. I guess that I've never found myself in a situation where I needed someone to do the talking for me, at least not since the birth of my children. Perhaps I should have expected that. I did not. TAKE NOTES, BOB!!!! ADVOCATE!!!!

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  33. I tried to warn you about the horrible pain the first couple of days. I didn’t take the opioids after the first day , nausea was worse, just took tylenol. Are you given exercises to do? I hated doing them but I believe that they helped in giving me a better range of motion. That hospital stay was torture. Always better off in your own home. It should be all up hill now. Get well soon Debby Gigi

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    1. You did. I'm also a person with a high threshold of pain, so I've been warned many times about pain that simply didn't hold true for me. I guess that after 67 years, I've gotten very comfortable with thinking that I can handle things. This, I could not.

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  34. I’m sorry to hear about your experiences. I’m the same, narcotics make me sick and I’m absolutely worthless without sleep. I’m happy to hear you are moving ahead and away from the worst of the pain. My most cheerful wishes for your recovery.
    Bonnie in Minneapolis

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    1. I was talking to my sister today. She has the same problem. I did not know. Every single person that I speak to, though, they all say the exact same tihng: "That's a pretty common response to narcotics." If it is so common, why in the world do you have such a hard time convincing people that they are making you sick...very sick? That was the pits!

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  35. Oh sweetheart - that sounds like hell on wheels. Thank God you are home and improving and over the worst of the pain. My goodness - I bet you are glad that is behind you.

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    1. Whoo boy, Jennie. You can bet the ranch on that. I'm really so much better today, and so glad. Feeling quite perky, even!

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  36. You are such a trooper and I am glad you are on the road to recovery but it was definitely not a smooth trip. I hope you are feeling even better today.

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  37. Hi, I read your blog all the time but this is the first time I have commented. I feel every bit of your pain as I had a total knee replacement January 31,2023. If you'd like to read about my experience in the hospital and after I wrote about it on my blog.
    https://jansjabber.blogspot.com/2023/01/finally.html
    I think it covers about 4 posts. I'm impressed with what you've already been able to do!!

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    1. Oh my gosh. Your experience makes my night seem like a walk in the park. Yikes. Just yikes.

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  38. Never had a knee replacement but have had other surgeries and learned early on to be assertive for needs and wants. An advocate helps too. What a horrible experience for you. If I have to have the narcotic I take the smallest dose possible and wean myself fairly quickly from it. My husband handles the meds for me.

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  39. Kay of Musings: Holy smokes! This is absolutely appalling. It’s a warning too about having an advocate with you for your stay. I’ll be sure to have speed dial or something on my cellphone if allowed or make sure I have loved ones coming regularly if I end up in the hospital. This is so scary.

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  40. So odd, the last few times I have left a comment it never shows up! Blogger is so weird. It sounds like you have this all in hand, even after that horrible hospital experience. My hospital stay was great, awesome, timely care. It was at home that was terrible and very stressful.
    I hope your recovery continues to go smoothly! You are off to a fantastic start.

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 Quiet day today. (Thank goodness!) We got up early and went to Eastern States to buy the rest of the trim boards. We saw a couple with a 5 ...